No total, 59 pacientes (9-16 anos, T1DM por ≥1 ano) responderam a uma versão do Instrumento de Qualidade de Vida para Jovens com Diabetes (DQOLY) adaptada aos pacientes brasileiros (IQVJD). Os objetivos deste estudo foram avaliar e identificar os fatores que influenciam a HRQOL de crianças e adolescentes com T1DM. Quality of life Child Adolescent Diabetes mellitus, type 1Ī qualidade de vida relacionada à saúde (HRQOL) no diabetes mellitus tipo 1 (T1DM) tem sido amplamente estudada. CONCLUSION:Īmong T1DM patients, 71% had IQVJD scores compatible with better HRQOL. Despite coming from low-income households, most patients had access to the recommended treatment. There was a high DKA rate at diagnosis, and the metabolic control was inappropriate in most patients. An isolated analysis of each domain and the questionnaire results showed that the following factors were associated with better HRQOL: height Z-score, lower HbA1c, practice of physical activity, use of pen, fewer hospitalizations, and residence in a rural area. The results of the DQOLY were within the cutoff limit for better HRQOL. All patients administered multiple insulin doses (mean 4.2 applications/day), 74.5% used rapid-acting and intermediate-acting insulin analogs, and 67.8% used pens for insulin application. Mean glycated hemoglobin (HbA1c) in the previous year was 10%. ![]() The median age at diagnosis was 7.16 years, 63% presented diabetic ketoacidosis (DKA) at diagnosis and 29% during follow-up. ![]() The mean age of the patients was 13.6 years, and 57.6% were girls. This instrument comprises 50 items (domains satisfaction, impact, and concerns, with the lowest scores corresponding to better HRQOL) and a questionnaire gathering social, demographic, and clinical parameters. In total, 59 patients (9–16 years, T1DM for ≥1 year) responded to a version of the Diabetes Quality of Life Instrument for Youth (DQOLY) adapted to adapted to Brazilian patients, the Instrumento de Qualidade de Vida para Jovens com Diabetes (IQVJD). The objectives of this study were to evaluate and identify the factors influencing the HRQOL of children and adolescents with T1DM. Health-related quality of life (HRQOL) in type 1 diabetes mellitus (T1DM) has been widely studied. Universidade Federal do Paraná, Pediatric Endocrinology Unit, Department of Pediatrics, Hospital de Clínicas, Curitiba, PR, Brasil About the authors Universidade Federal do Paraná, Pediatric Endocrinology Unit, Department of Pediatrics, Hospital de Clínicas, Curitiba, PR, Brasil Suzana Nesi França Universidade Federal do Paraná, Pediatric Endocrinology Unit, Department of Pediatrics, Hospital de Clínicas, Curitiba, PR, Brasil Luiz de Lacerda Filho ![]() Universidade Federal do Paraná, Pediatric Endocrinology Unit, Department of Pediatrics, Hospital de Clínicas, Curitiba, PR, Brasil Julienne Ramires de Carvalho ![]() Universidade Federal do Paraná, Health Statistics and Methodology Unit, Department of Pediatrics, Hospital de Clínicas, Curitiba, PR, Brasil Rosana Marques Pereira Universidade Federal do Paraná, Pediatric Endocrinology Unit, Department of Pediatrics, Hospital de Clínicas, Curitiba, PR, Brasil Monica Nunes Lima Cat Universidade Estadual do Centro-Oeste, Physical Education Department, Irati, PR, Brasil Melina Morandini CEP 80.060-900 E-mail: Luis Paulo Gomes Mascarenhas CORRESPONDING AUTHOR: Karina Andressa Khater Fontes Martins, Rua Padre Camargo, 250 Alto da Glória, Curitiba - PR, Brasil, Phone: (41) 3204-2300.
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